April’s NHS Improvement investigation on patient choice was followed by the announcement earlier this month of the framework/compulsory guidance, “Choice in mental health: how it can work for you”.It’s hugely significant in giving patients the legal right to a treatment team of their choice.
It means if there any problems following a referral by a GP to a consultant or specialist in mental health, you can immediately go to the commissioner with this document, or go to NHS Improvement directly.
The guidance is relevant for choice of out-patient treatment whether it’s an IAPT provider or a secondary care consultant team. It includes information detailing:
• your right to choose the provider that best meets your individual needs;
• how you can choose any provider of the service you need;
• when your choice isn’t appropriate for your care needs; and
• how your commissioners and healthcare professionals should be proactive in facilitating choice.
Where the guidance states that, “In some areas an assessment service will help to decide what type of treatment is best. If this is the case, you can choose a provider once the assessment has recommended a type of treatment”, this means that if an assessment on a care pathway recommends out-patient CBT you can choose where to be referred and don’t have to exhaust treatment locally or be taken to a Funding panel.
Also, “[Patients] can choose providers known for specialist care or tertiary care if they offer the type of service required.” This is relevant to referring patients to Dr David Veale for the OCD/BDD team at the Centre for Anxiety Disorders and Trauma (CADAT) at the Maudsley Hospital.
There’s also now an out-patient service for compulsive skin-picking/trichotillomania and tics at the Anxiety Disorders Residential Unit at the Bethlem Royal Hospital (as far as The Foundation is aware, the only specialist service for this).
We think this new policy may encourage others to develop more specialist services in OCD/ BDD so this is hugely welcomed and clearly very good news.
A selection of beautiful Christmas cards by the designer Kitty Wallace is now available to purchase directly from Kitty’s site. The cards feature three different but equally eye-catching designs shown above and are available in various pack sizes ranging from 10 to 100. They can be bought in packs of a single design or as an assorted selection.
The cards are available at: https://www.etsy.com/shop/KittyWallaceDesigns?ref=l2-shop-info-name
All the proceeds from the cards go to the Body Dysmorphic Disorder Foundation.
Thank you for supporting us.
June 11, 2015
The Body Dysmorphic Disorder Foundation held its first major conference on the little-known mental disorder in London on Saturday 30 May, 2015. The conference was aimed exclusively at people with BDD and their families, and combined speeches by professionals in the field with inspirational speeches and a number of workshops and exhibits.
The international conference, the first of its kind in the UK, took place at the Brunei Gallery at the School of Oriental and African Studies from 9am to 5pm. It was sold out with 290 people registering to attend and ran at full capacity on the day. The conference brought together sufferers and their carers as well as health professionals who treat them. The keynote speaker was Katharine Phillips, Professor of Psychiatry and Human Behaviour at Brown University in the USA, and the author of “The Broken Mirror; understanding and treating BDD”. Other speakers included BDDF trustees and experts in the field Dr David Veale and Rob Willson. The workshops touched on a wide variety of BDD-related topics, including Cognitive Behaviour Therapy for BDD, Compulsive Skin Picking, Exploring the Impact of BDD on Close Relationships, Medication for BDD question and answer session, Therapy for BDD and the Role of Advocacy, Male Concerns in BDD, Attention and Rumination in BDD, Exploring the use of Self-Portraits in BDD, and Children and Adolescents with BDD. There were a number of inspirational speeches given by people from around the world who have successfully recovered from BDD, and exhibits featuring artwork and a short film, as well as exhibition stands put on by groups such as OCD Action.
Anonymous feedback was overwhelmingly positive. “One of the best conferences I have ever been to,” said one health professional. “I feel really confident that I know the next step for my brother and how to support him,” said a carer. “Well organised, varied and informative. I look forward to the next one,” said a member of a charity. “Keep up the good work. You’re making a difference. Thank you!” said a person with a BDD.
Welcome Introduction – Rob Willson
Inspirational Speaker – Annelin Keijzer
Inspirational Speaker – Danny Bowman
Inspirational Speaker – Carla Mark-Thompson
Inspirational Speaker – Dominic Edwards
Keynote Speaker – Katharine Phillips MD
CBT for BDD – Rob Willson
Making of the BDD Film – Caplin/Veale
How to Get Good Therapy – Simon Darnley
Role of Advocacy – Collette Byrne
Attention & Rumination – O’Conner/Callaghan
More details are available here.
The BDD Foundation was asked to consult and advise on a new production of the play Kafka v Kafka, centred on the complex relationship between the main protagonist Franz Kafka and his overbearing father figure. It is widely accepted but not well known that Kafka almost certainly suffered from BDD, and the Foundation was able to offer the director and the actor playing Kafka some valuable insight into living with the condition, and how this may have contributed to the way Kafka saw and related to the world. The producers are keen to explore this element and influence on one of the twentieth century’s most influential and gifted writers, as well as shed light on this often misunderstood and devastating disorder, and the Foundation is proud to have contributed.
An entire page of the programme is dedicated to BDD and the BDD Foundation:
“An interesting window into Kafka’s complex mind may be offered by the less recognised possibility that he probably suffered from a condition known as Body Dysmorphic Disorder (BDD). Quotes and sources suggest as much, and perhaps it is one reason he chose to metamorphose into a beetle rather than a unicorn in his most famous work. Simply put, he felt a hidden ugliness; his internal mirror was broken.
More prevalent than anorexia, BDD is a sometimes serious mental health condition characterised by a debilitating obsession with perceived defects in appearance. Sufferers are not vain, but instead will retreat into self-loathing, withdraw from social life, and, tragically, many take their own lives.
The BDD Foundation is a charity originally conceived by Ruth Ryan (who took part in a BBC documentary on BDD in 2006), and subsequently resurrected and relaunched in 2013. The BDDF is devoted exclusively to alleviating the often silent suffering of those afflicted by the condition through raising awareness, providing information and support to people struggling with BDD, facilitating the creation of a mutual support network among sufferers and carers around the world, and contributing to a better appreciation and understanding of the condition by advising the media on presenting information to the public.
They can be found online: bddfoundation.org on Twitter @bddfoundation and facebook.com/BDDFoundation”
The play runs from 4th November to 16th November at the Etcetera Theatre on Camden High St.
The BDD Foundation is proud to announce the launch of a new peer support group for BDD sufferers and their family, friends and carers. It is conveniently located in central London, and we hope this will permit more people to attend more easily.
The group will provide an opportunity to meet other people with BDD, share experiences and concerns about the illness and provide mutual support. The group also welcomes carers, family and friends.
Guest speakers, such as professionals that specialise in the treatment of BDD and people that are recovering from the illness, will be invited to give informative and inspirational talks every few months.
For more information please email Minnie at Minnie@bddfoundation.org or text her on 07973100123.
Where: The Nightingale Hospital
11-19 Lisson Grove
London NW1 6SH
(Signing in at the hospital reception will be required)
Tube Station: Marylebone
When: First Monday of the month
Dates for 2014: 6th October, 3rd November, 1st December; 2015: 5th January, 2nd February, 2nd March
Meeting Time: 18.30 – 20.00
The group will use Skype technology (Using audio only – no visual/webcams will be used)
For more information contact Keira Bartlett, OCD Action Groups and Communities Manager on 01263 510705 or email firstname.lastname@example.org
The link is below: