In Room 5, Helena Merriman shares stories of real-life medical mysteries, interviewing people who – like her – were changed by a diagnosis.
This week, Tilly was featured on the BBC Sounds’ Room 5 Medical Mysteries program with broadcaster Helena Merriman. Tilly explains how, from an early age, she, never felt right in her body and how utterly disorientating that is, until one day she sat down with a therapist to put a label on that feeling.
BDD is misunderstood – even in the medical profession where the average time from recognising there is a problem to an actual diagnosis is 10 years! In that time, lives can spiral out of control, social, family and professional life can diminish to zero.
“From the outside, Tilly seems to have life figured out. She works in fashion, lives on a house-boat – for which she’s done all the plumbing and electrics. But inside, she’s struggling. She’s always felt wrong in her body – ever since school. Then one afternoon, Tilly sits down with a therapist – who fits the pieces of the puzzle together and gives Tilly a diagnosis. Tilly’s diagnosis explains the way her brain is wired – now her challenge is to re-wire it, and change her future.”